| |
Dear Dr. God, You performed a hysterectomy on me November 11, 1996. Little did I know
that would be the saddest day of my life. That surgery would create
emotional grief and pain like I had never known could exist. My father's
death didn't even come close to the grief and pain my hysterectomy caused
me. Today I live my life with less than half of the me I used to be. I feel
like I have died a thousand deaths. I came to see you earlier that year because of pelvic pain. You prescribed
Tylenol #3's and later #4's along with a little speech about how the doctor
who had the practice before had prescribed too much pain medicine for his
patients. A little while later you also told me about your son who was on
drugs and who, it sounded like, didn't have much of a life because of the
dugs. You also told me about a woman who was getting pain medication from
the doctor who had the practice before you. You told her she should get a
hysterectomy. Then you scheduled her for surgery, and she didn't show up.
After you told me this I felt like I should be obedient and not disappoint
you. I was also feeling guilty about taking the pain medicine. Now I wish I
would have done the same as that woman. She was the smart one. I am so sad
I went through with it -- the saddest I have ever felt. Looking back, it
seemed like you didn't know where one person ended and another person began
- like all the people in your personal life and in your practice were
merged together. You were a doctor who I found especially handsome and attractive, and I
believe you knew it. I felt and feel ashamed of my attraction to you. When
you first began seeing me, you sounded unsure of whether or not to give me
pain medicine. But, unwillingly, you prescribed it for me. I was anxious to
do something about my pain especially when it sounded like the pain
medicine would be in short supply. I feel like you played me. You spoke of how your timing in resolving this
matter was different than my timing. What timing had to do with ANYTHING,
I'll never know. All I know is I was tired of being in pain and wanted to
do something about it. We talked about the fact that I had a history of
endometriosis. You were also informed I had a history of depression. At
first you told me of a treatment using Lupron (I think), because you were
sure my pain had to do with endometriosis. I heard something vague about
Lupron and was worried about gaining weight and said so. Then you brought
up hysterectomy. You made it sound as though it was a sure fire way to end
the pain. Then you told me about the high cost of your insurance. However,
I agreed to the hysterectomy because you made it sound like it was the
only way to treat my pain. You never mentioned anything about how the
surgery would affect my life. You just gave me a pamphlet (like that was
supposed to be enough of an explanation). I remember the pamphlet
mentioning something about sexuality. But it said most women end up feeling
more sexual. Today I say how could that ever be. Maybe it could happen with
one ovary intact but not with everything removed. When I read the pamphlet
I was alerted about sexuality post-hysterectomy. But I never said anything
to you because you were the doctor. You knew what you were doing. You would
help me never hurt me. I believed you had in mind what would be best for me
- that this would cure the pain. I talked to other women who had had hysterectomies, and they said it was
the best thing they could have done. Little did I know that these women had
only one ovary removed. I didn't know there were different types of
hysterectomies. I didn't even understand I would be going through menopause
until after the surgery when I was given estrogen. From what I was told the
estrogen I was given would replace the estrogen my ovaries produced. I now
know there is no substitute for the hormones your ovaries produce. I
remember just before going under for surgery, I said I wanted testosterone.
You said "no, it would make me too horny." Whenever I think about putting
on those white stockings before the surgery, my heart sinks right through
me. Little did I know this would be the worst decision I ever made in my
life. And I made that decision because I believed you. As a direct result of my hysterectomy I feel the deadest I have ever felt.
I didn't even know a live person could feel this dead. I used to be a
sexual, lively and vibrant human being. I had no idea this hysterectomy
could kill all of that. I feel like I have only half of the heart and
ambition I used to. And after all of this I still had pain. I still have
pain today, but now I know the pain is and was from adhesions. And the
adhesions were made worse by my hysterectomy. Over and over, not only from
you, but other physicians as well, I have been discounted, discredited and
made to feel like I have been making up this pain - like it was "all in my
head." I want to know why? How could you? How could any of you?
Before the surgery I was also a sensual person, and by that I mean I was
sensitive in my sight, sound, touch, smell and taste. I am an artist, or at
least I used to be. I was a sensual painter and that was my truth. I used
to communicate this in my art. My art used to speak to people. It said look
at this, feel this, hear this, smell this, touch this maybe in a way they
would not have before. I no longer feel capable of doing this. There is no
basis for it as there was before. The feeling I have left is flat except
for the squeezing pain. I no longer feel sexual since my hysterectomy, and it happed to me
practically overnight. I feel a love of some sort but not like the
embracing love I used to feel. I was a very passionate person, but that has
gone too. I can still have orgasms, but I have to concentrate so hard to
have them. I used to feel an energy and power build up in me that needed
release. Since the hysterectomy it no longer exists. It used to drive me
crazy to have my nipples caressed. Now I can barely stand to have them
touched. I used to be ready with wetness for sex. Now I'm dried up. I even
get jealous of my husband's sexuality because I used to feel what he feels,
and now it is gone. A month or so after my hysterectomy I wrote a letter and read it to you in
your office. I got confused and mixed up. I couldn't say what I wanted to.
I didn't have the information or the words I have today. It was very
frustrating to know there was something radically different about me from
the surgery but not be able to say what it was. About five or six months after the surgery, I came to see you again. I told
you how I no longer felt sexual. You proceeded to tell me about a woman who
worked for you on whom you performed a hysterectomy. She had been angry with
you because she no longer felt sexual. Then you said she found a man and
everything was o.k. I wish I could perform castration on you, and when you
would tell me how you no longer felt sexual, I would tell you to find a
woman and everything would be fine. Over and over I have wished I could do
to you what you have done to me! Then and only then would you be able to
completely understand how less of a woman I feel - how less of a human being.
At that time you prescribed an estrogen with methyl-testosterone. All it
did was make me break out and made me mean. You said it was too much for me
to take. I still take methyl-testosterone in gel form. I'm afraid to stop
taking it because I am afraid the very little bit of sexuality that still
exists in me in a mutated form will be gone. Not only that but information
I have sought explains testosterone is good for your heart. I don't want to
stop taking any of the hormones I take even though they can never replace
the hormones my body used to make. Also as a result of my hysterectomy I haven't had a good night's sleep in
seven years and I have problems having regular bowel movements. October of
2002 I had yet another surgery to remove adhesions. These adhesions were
attached to my colon. But these problems are back again. You doctors don't
know what you are removing from our bodies when you remove our reproductive
organs. I believed the worst that could happen as a result of the
hysterectomy would be I would never be able to have my own children. Being
single and 40 years old, I was not even concerned with having children.
How wrong I was. Because of you I have felt misled, unbelieved,
unimportant, used, betrayed and lied to. Ultimately I felt like I was
kicked to the curb and forgotten. After all my hysterectomy had helped pay
for the high cost of your insurance. Then you didn't need me anymore. For
this I have paid a price with my very life. Even though I'm still alive I
feel I walk the earth as a dead person. No one deserves to go through what
I went through. No one. Sincerely, DebbieThis page was last updated Thursday, May 6, 2004 11:20:18
Medical disclaimer: Always seek the advice and supervision of a health care professional when considering any information found on the Internet. The information contained on this website cannot take the place of personalized medical advice and treatment from a qualified physician. The reader should regularly consult a physician in matters relating to her or his health, particularly with respect to any symptoms that may require diagnosis or treatment. Website disclaimer: Sans Uteri Hysterectomy Forum, founded by Beth Tiner October 24, 1996, has been under the leadership of Drs. Elizabeth and Marcus Plourde since October 25, 2005. Copyright notice: The material on this PRIVATE list & website is copyrighted. Findings.net information and listserv entries may not be reproduced, forwarded, or quoted from without written permission from the List Managers. © Copyright 1996-2006 Findings.net |